National sickle cell anemia elimination mission to end disease by 2047

National sickle cell anemia elimination mission to eliminate sickle cell by 2047 launched by prime minister narendra modi in shahdol madhyapradesh :

The mission aim is to enhance the care provided to all individuals affected by Sickle Cell Disease, ensuring a brighter future for them and reducing the prevalence of this condition and to achieve this by implementing a comprehensive and coordinated approach that includes effective screening and awareness strategies.

In line with the National Health Mission, the Government of India extends its support to states for the prevention and management of sickle cell disease, in accordance with their annual PIP proposals.

Furthermore, the NHM provides assistance for capsule hydroxyurea and free blood transfusions for all Sickle cell patients (both men and women), subject to the respective state’s proposal.

In the union budget for FY 2023-24, a momentous announcement has been made to initiate a mission aimed at eradicating sickle cell anemia by 2047.

This ambitious mission entails a multifaceted approach encompassing awareness campaigns, universal screening of approximately seventy million individuals within the age range of 0 to 40 years in affected tribal areas, and counseling through collaborative endeavors involving central ministries and state governments.

To address the challenges surrounding the screening and management of sickle cell disease, the State Haemoglobinopathy Mission has been established in Madhya Pradesh. In this regard, a pilot project of National sickle cell anemia elimination mission was launched on November 15th, 2021, in the districts of Jhabua and Alirajpur, M.P., with 89 tribal blocks included in the second phase of the project.

According to the state’s report, a total of 993,114 individuals have undergone screening, out of which 18,866 were identified as having HbAS (Sickle Trait), and 1,506 were diagnosed with HbSS sickle cell disease. Additionally, the state government has set up an Integrated Centre for Hemophilia and Hemoglobinopathies in 22 Tribal Districts to facilitate the treatment and diagnosis of patients.

sickle cell anemia is a hereditary blood disorder that affects millions of people worldwide, including a significant number in India. This article aims to provide comprehensive information about sickle cell anemia disease in India, including its causes, symptoms, and available treatments. By raising awareness and understanding about this condition, we can empower individuals and communities to better manage and support those affected.

What is Sickle Cell Anemia?

Sickle cell anemia is a genetic disorder characterized by the presence of abnormal hemoglobin, a protein responsible for carrying oxygen in red blood cells. In individuals with sickle cell anemia, the red blood cells become crescent-shaped, rigid, and prone to breaking down. Due to this various health problems increase.

Sickle cell Anemia Prevalence in India

India has a significant burden of sickle cell anemia, with estimates suggesting that over 50 million people carry the sickle cell gene. The disease is most prevalent among certain ethnic groups, such as the tribal populations in Central India, particularly in states like Maharashtra, Chhattisgarh, Madhya Pradesh, and Odisha.

Causes of Sickle Cell Anemia

Sickle cell anemia is an inherited condition caused by a mutation in the gene that instructs the body to produce hemoglobin. When both parents carry the abnormal gene, there is a 25% chance of their child inheriting the disease. It is important to note that carriers of the sickle cell gene may not exhibit symptoms but can pass the gene to their offspring.

Symptoms and Complications :

The symptoms of sickle cell disease can vary from mild to severe and may manifest differently in each affected individual. Common symptoms include chronic fatigue, frequent infections, delayed growth in children, episodes of severe pain called “crises,” jaundice, and vision problems. Complications may arise due to reduced oxygen supply to vital organs, leading to organ damage and an increased risk of stroke, pulmonary hypertension, and other serious conditions.

Diagnosis :

Diagnosing sickle cell disease involves a series of tests, including a complete blood count (CBC), hemoglobin electrophoresis, and genetic testing. These tests help confirm the presence of abnormal hemoglobin and determine the specific type of sickle cell disease.

Treatment Options

While there is no definitive cure for sickle cell anemia, several treatment approaches aim to manage symptoms, prevent complications, and improve the quality of life for affected individuals. Treatment plans may include pain management during crises, blood transfusions, medications to reduce the frequency of crises, and bone marrow transplantation in severe cases.

Support and Management

Living with anemia sickle cell requires ongoing support and management. Patients are encouraged to adopt a healthy lifestyle, including regular exercise, balanced nutrition, and staying hydrated. It is crucial to avoid factors that may trigger a sickle cell crisis, such as extreme temperatures, dehydration, and infections.

Awareness and Education

Raising awareness about sickle cell anemia is vital to dispel misconceptions and reduce the stigma associated with the disease. Educational campaigns, community outreach programs, and collaboration with healthcare professionals can help in early detection, appropriate management, and improving the overall quality of life for individuals with sickle cell anemia.

Research and Advances

Medical research plays a significant role in advancing the understanding and treatment of sickle cell anemia. Ongoing studies focus on developing gene therapies, new medications, and improving supportive care approaches. Increased investment in research and collaboration among scientists, healthcare providers, and policymakers are essential to finding innovative solutions for this challenging disease.

Sickle cell anemia is a complex genetic disorder that affects a substantial number of individuals in India. By enhancing awareness, improving access to screening and diagnostic facilities, and providing comprehensive care, we can make a positive impact on the lives of those living with sickle cell anemia. Through ongoing research and collective efforts, we move closer to better treatments, improved outcomes, and ultimately, a world free from the burden of anemia sickle cell disease.

Remember, knowledge is power. Together, let us support and empower those affected by sickle cell anemia in India and work towards a brighter, healthier future.

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